Who is DMN?
An Experienced Partner in Disease Management
Become a Partner for Better Health
The Origin of Disease Management Network
Disease Management Network (DMN) was founded on the principle that rare disease communities and the pharmaceutical companies that provide treatments for those diseases can each accomplish more and enjoy greater success when they work together. The DMN approach was born of a system set in place more than 20 years ago to serve individuals with Alpha-1 Antitrypsin Deficiency.
At the time, Alpha-1, a genetic disease that can affect the lungs and/or liver, was underdiagnosed, research was underfunded, and vital treatments were threatened by a shortage of necessary augmentation therapy product. Alpha-1 community leaders approached pharmaceutical industry treatment providers with a win-win proposal: AlphaNet, a not-for-profit organization, would train peer coordinators to provide disease management services to achieve better compliance and improved outcomes for Alpha-1 patients. These trained coordinators were individuals who themselves were receiving augmentation therapy for Alpha-1.
Those original goals were quickly achieved, and more benefits emerged. The disease management coordinators, in monthly one-on-one contact with patients, were in a unique position to gather data about the disease and its progression. The model resulted in higher drug adherence, patients being placed on the drug faster, and an increased survival rate. Furthermore, since its inception, AlphaNet has contributed more than $70 million to support Alpha-1 research and community programs. Decades worth of data has also been collected, fueling numerous outcome studies and peer-reviewed research papers.
Disease Management Network establishes an integrated system of education, interventions, measurements, and healthcare delivery refinements to optimize clinical and economic outcomes for individuals within a specific disease group.
Having honed that approach with AlphaNet in the United States and with AlphaNet Canada, DMN is uniquely equipped to share its successful methods with other disease communities, their patients, advocates, and medical partners. We help those diagnosed with rare or chronic diseases improve their lives, while also funding research and improving treatment outcomes.
Our Mission
We are a not-for-profit organization that builds partnerships with patient communities and healthcare entities to provide peer-coordinated, data-driven disease management services for patients with rare or chronic conditions.
Who We Work With
Not-For-Profit Organizations
DMN can help your not-for-profit organization create and establish an ongoing, peer-to-peer model, as well as offer flexible data gathering, monitoring, and reporting. Our team will also assist in developing comprehensive educational reference guides to support patients, families, caregivers, and physicians. Throughout the partnership, we’ll create a consistent revenue stream for your foundation or community.
Pharmaceutical Industry Partners
With the help of DMN, your pharmaceutical company can establish a network of peer disease management Coordinators to help foster personal understanding and brand loyalty. These Coordinators will collect important de-identified patient data to improve patients’ quality of life. This data can also be utilized for future study recruitment. DMN gives you the opportunity to spearhead a disease management program, shape it, and build a network of peer Coordinators. Portions of the program fees will be donated directly to the rare disease community through the partnering foundation, and all services are free to patients.
Reach out to learn more about partnering with Disease Management Network.
We are a not-for-profit organization that builds partnerships with patient communities and healthcare entities to provide peer-coordinated, data-driven disease management services for patients with rare or chronic conditions.